in our hoUSe...!" to discuss and inform about Usher Syndrome and to continue my own personal journey with this condition. I do NOT have US, but both my daughters have Type 2. They are both adults leading productive and successful lives.
If you wish to follow this journey along with us, please follow the new blog here.
If you'd like to learn more, you can join us on Facebook on my daughter's Community Page, Usher Me In.
If you'd like to support the vastly underfunded research on Usher Syndrome, please visit the various links on "in our hoUSe...!, a parent's perspective on Usher Syndrome."